My gastrointerologist told me if I am not interested in being on Remicade (or a similarly priced drug) for the rest of my life I should seek treatment elsewhere. She did not prescribe me Prednisone to stop my flare. She wants me to take tests and have a colonoscopy. She wants to discuss medication optionsContinue reading “Health Care: Denied”
Category Archives: Uncategorized
Food Diary 8-3-20
Pain 1/10 Bloating 1/5 BM 5/7 Fatigue 2/10 Toast, oatmeal, whole grain pasta, bananas. I tried homemade almond milk in my coffee today and it was delightful! No emulsifiers, just almonds and water. Finally have my GI appointment tomorrow.
Food Diary 8-2-20
Pain 0/10 Bloating 3/5 BM 5/7 Fatigue 2/10 I finally got a regular night’s sleep. Tried adding potatoes to the diet yesterday, don’t think I’m ready yet. Made my tum feel weird and my poo has gone back to a 5. Today I tried eating a raw apple and had some considerable bloating. I’ll keepContinue reading “Food Diary 8-2-20”
Food Diary 7-31-20
Pain 2/10 Bloating 1/5 BM 4/7 Fatigue 5/10 Slept a solid 6 hours. I did manage to take a nap mid day. Got some advice from a dear friend about some physical therapy moves for pain. Toast + pb + jam, apple juice, coffee, oatmeal + almonds + dates + coconut, whole wheat pasta +Continue reading “Food Diary 7-31-20”
Food Diary 7-30-20
Pain 2/10 Bloating 1/5 BM 4/7!!!!!!!!!!!!!!!!!! Fatigue 2/10 First solid 4 poo since my flare started. That’s right bitches! Coffee, toast + PB, banana, oatmeal, whole wheat pasta, apple juice.
Food Diary 7-29-20
Pain 3/10 Bloating 1/5 BM 5/7 Fatigue 2/10 Been coasting along with about the same daily symptoms, and eating the same standard foods. I added in dirty rice yesterday. It was made with white rice and was not very filling. Whole grains y’all! Still on the steroids. Side effects: insomnia, tension and feeling “up” allContinue reading “Food Diary 7-29-20”
Meditation for Pain
Please allow me to share with you the meditation techniques I have used to help with chronic pain and generalized anxiety and panic disorder. This shit works. Beginner Once or twice a day, check in with your self with a guided meditation. A short five minute video can help you practice and get in theContinue reading “Meditation for Pain”
Isolation
Now entering the second week of steroids for my Crohn’s flare. What is people? What is human interaction? Maybe I’ll be able to do that again in 2 months when I’ve tapered off Prednisone. I have my telehealth visit the day before I’m supposed to go back to work. Hopefully my job will understand myContinue reading “Isolation”
Food Diary 7-26-20
Pain 2/10 Bloating 1/5 BM 5/7 Fatigue 3/10 Symptoms have levelled out for the past few days, today is typical. 40mg steroid a day for one more week. Toast/pb/jam, coffee, whole wheat pasta, 4 bananas
Food Diary 7-23-20
Pain 2/10 Bloating 1/5 BM 5/7 Fatigue 5/10 Shoulder/kneck pain since I woke up. Got telehealth appt with GI for Aug 4. The next in person availability was Oct 26. I would be dead by then. No quinoa no bloating better poo. Coffee, toast + pb + jam, oatmeal + dates + nuts + coconut,Continue reading “Food Diary 7-23-20”
