Pain

Two nights ago I experienced what I think may have been the worst pain of my life. Following a very high stress week, like crying at work, the students can tell something is wrong stress, like your elderly parents and disabled brother are living in filth with mouse shit all over their kitchen and onlyContinue reading “Pain”

Exercise: it helps fatigue!

One of my favorite activities to do when I can’t do anything because I have crippling fatigue is to read websites about what will help my fatigue. Many of these websites list exercise as a practical way to boost energy and mood. So… I want to just clarify that for me, fatigue means I’m incapableContinue reading “Exercise: it helps fatigue!”

Health Care: Denied

My gastrointerologist told me if I am not interested in being on Remicade (or a similarly priced drug) for the rest of my life I should seek treatment elsewhere. She did not prescribe me Prednisone to stop my flare. She wants me to take tests and have a colonoscopy. She wants to discuss medication optionsContinue reading “Health Care: Denied”

Losing Faith in my GI

My gastroenterologist got me through the worst, and I want to put that up front, first and foremost. Her aggressive plan for treating my worst bout of Crohn’s Disease put me in remission The First Time. That is a feat, and I am so thankful for that. Months of steroids cut the inflammation, and aContinue reading “Losing Faith in my GI”

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