My gastrointerologist told me if I am not interested in being on Remicade (or a similarly priced drug) for the rest of my life I should seek treatment elsewhere. She did not prescribe me Prednisone to stop my flare. She wants me to take tests and have a colonoscopy. She wants to discuss medication optionsContinue reading “Health Care: Denied”
Tag Archives: chronic illness
Food Diary 7-29-20
Pain 3/10 Bloating 1/5 BM 5/7 Fatigue 2/10 Been coasting along with about the same daily symptoms, and eating the same standard foods. I added in dirty rice yesterday. It was made with white rice and was not very filling. Whole grains y’all! Still on the steroids. Side effects: insomnia, tension and feeling “up” allContinue reading “Food Diary 7-29-20”
How to Survive a Pendemic
Losing Faith in my GI
My gastroenterologist got me through the worst, and I want to put that up front, first and foremost. Her aggressive plan for treating my worst bout of Crohn’s Disease put me in remission The First Time. That is a feat, and I am so thankful for that. Months of steroids cut the inflammation, and aContinue reading “Losing Faith in my GI”
Practical Skills for Living in a Pandemic
Basic Cooking Just…start with an onion and try not to burn it. Coping with Isolation People with chronic illness will go through many periods of isolation in their lives. That’s what happens when you are too sick, or weak, or fatigued, or in pain, to leave your bed or your home. Work is mostly outContinue reading “Practical Skills for Living in a Pandemic”
Polenta Potatoes
Swig of olive oil 1 onion 3 Yukon gold potatoes 2 large carrots 2 celery stalks Garlic Sea salt Bay leaves, thyme, black pepper Veg stock Quick grits Chop the veggies and saute in the olive oil. Add herbs and spices. Cook a bit to mingle flavors. Add veg stock and simmer for 30 mins.Continue reading “Polenta Potatoes”
Fatigue
My thyroids fucked up but I’m too tired to tell you about it
Irritable #4
A year of comics and rumination about chronic illness now available. Email totbchicago@gmail.com for a printable PDF and instructions, or I can send you a copy by snail mail.
Remission
Sick Days
There is a certain amount of guilt that accompanies taking a sick day. People who are not chronically ill don’t take time off for fatigue. People who are not chronically ill don’t have the innate sense that the return of tell-tale symptoms require rest and self care. Alas, I am chronically ill, and my bodyContinue reading “Sick Days”
Eating Vegan with Crohn's Disease 