CDED Reflections

So I tried to manage my last Crohn’s flare with diet, and a heavy dose of steroids. I tapered off the steroids and did not have a relapse of symptoms. I believe this is because (1) steroids are a cheap, widely available, and effective treatment for Crohn’s flares, and (2) diet has an impact onContinue reading “CDED Reflections”

Life with Multiple Chronic Illnesses

In a word, confusing. What is causing the symptoms? Are these conditions impacting each other? I have Crohn’s disease, hypothyroidism, and Seasonal Affective Disorder. What is causing my fatigue? My brain fog? Why does my whole body hurt? What is throwing off my sleep schedule? When you are navigating multiple diagnosis, specialists make it moreContinue reading “Life with Multiple Chronic Illnesses”

Food Diary 8-29-20

Well I guess I was doing the Crohn’s disease exclusion diet wrong. The steroids are almost tapered out and I had explosive diarrhea the last 3 days. I got some better clarification on exactly what to eat and when. I can’t really afford enteral nutrition/meal replacement. I’m going to try just following the allowed foodsContinue reading “Food Diary 8-29-20”

Food Diary 7-29-20

Pain 3/10 Bloating 1/5 BM 5/7 Fatigue 2/10 Been coasting along with about the same daily symptoms, and eating the same standard foods. I added in dirty rice yesterday. It was made with white rice and was not very filling. Whole grains y’all! Still on the steroids. Side effects: insomnia, tension and feeling “up” allContinue reading “Food Diary 7-29-20”

Polenta Potatoes

Swig of olive oil 1 onion 3 Yukon gold potatoes 2 large carrots 2 celery stalks Garlic Sea salt Bay leaves, thyme, black pepper Veg stock Quick grits Chop the veggies and saute in the olive oil. Add herbs and spices. Cook a bit to mingle flavors. Add veg stock and simmer for 30 mins.Continue reading “Polenta Potatoes”

Why Big Pharma is a Disaster for Crohnies

It starts with trauma. Your body is tearing itself apart. You are in extreme pain. You have never been this sick in your life. You can’t think straight, you’re fatigued, the sight of food repulses you, you are violently ill. Under these conditions, you will make the most important decisions of your life: decisions thatContinue reading “Why Big Pharma is a Disaster for Crohnies”

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